Human Genetics, Ethics and Policy (B-KUL-E09O3A)
Aims
At the end of the course the students will be acquainted with:
(1) The ethical, legal and social aspects, as well as policy discussions around human genetics
(2) Academic literature and policy documents in various policy discussions around human genetics
(3) Concrete case studies in various fields of applications related to human genetics
At the end of the course the students will have increased ability in critically analyzing the scientific literature regarding case studies in the field of human genetics and are more inclined to develop/demonstrate a critical attitude towards concrete discussions.
Previous knowledge
There is no specific preknowledge required for this course.
Is included in these courses of study
- Master in de revalidatiewetenschappen en de kinesitherapie (Leuven e.a.) (Afstudeerrichting Geestelijke gezondheidszorg) 120 ects.
- Master in de revalidatiewetenschappen en de kinesitherapie (Leuven e.a.) (Afstudeerrichting Inwendige aandoeningen) 120 ects.
- Master in de revalidatiewetenschappen en de kinesitherapie (Leuven e.a.) (Afstudeerrichting Kinderen) 120 ects.
- Master in de revalidatiewetenschappen en de kinesitherapie (Leuven e.a.) (Afstudeerrichting Musculoskeletale aandoeningen: optie manuele therapie) 120 ects.
- Master in de revalidatiewetenschappen en de kinesitherapie (Leuven e.a.) (Afstudeerrichting Neurologische aandoeningen) 120 ects.
- Courses for Exchange Students Faculty of Medicine (Leuven)
- Master of Bioethics (Leuven) 60 ects.
- Master of Rehabilitation Sciences and Physiotherapy (Leuven) (Specialisation: Children) 120 ects.
- Master of Rehabilitation Sciences and Physiotherapy (Leuven) (Specialisation: Internal Disorders) 120 ects.
- Master of Rehabilitation Sciences and Physiotherapy (Leuven) (Specialisation: Mental Health Care) 120 ects.
- Master of Rehabilitation Sciences and Physiotherapy (Leuven) (Specialisation: Musculoskeletal Disorders: Option Manual Therapy) 120 ects.
- Master of Rehabilitation Sciences and Physiotherapy (Leuven) (Specialisation: Neurological Disorders) 120 ects.
- Master in de logopedische en audiologische wetenschappen (Leuven) 120 ects.
- Bachelor in de geneeskunde (programma voor studenten gestart in 2023-2024 of later) (Leuven) 180 ects.
- Postgraduaat in de toegepaste ethiek (Leuven) (Track zorg) 35 ects.
Activities
4 ects. Human Genetics, Ethics and Policy (B-KUL-E09O3a)
Content
The course will address a number of current ethical and policy issues in the field of human genetics, including:
1) Introduction to basic principles such as informed consent, the right not to know, privacy and confidentiality, non-directiveness
2) Genetic testing in children and adolescents
3) Return of results and incidental findings
4) Prenatal diagnosis, preimplantation genetic diagnosis and debates around termination of pregnancy
5) Direct-to-consumer genetic testing
6) Gene editing and enhancement
7) Use of biological materials for genomic research, sample sharing and datasharing
8) Donor conception: conceiving a baby with genetic material of a third party
Course material
Published articles on Toledo.
Format: more information
Students are expected to prepare all sessions, which will be designed in the form of interactive lectures and class discussions.