Human Genetics, Ethics and Policy (B-KUL-E09O3A)

4 ECTSEnglish26 Second termCannot be taken as part of an examination contract
Borry Pascal (coordinator) |  Borry Pascal |  Dierickx Kris
POC Bioethics

At the end of the course the students will be acquainted with:

(1)        The ethical, legal and social aspects, as well as policy discussions around human genetics

(2)        Academic literature and policy documents in various policy discussions around human genetics

(3)        Concrete case studies in various fields of applications related to human genetics

At the end of the course the students will have increased ability in critically analyzing the scientific literature regarding case studies in the field of human genetics and are more inclined to develop/demonstrate a critical attitude towards concrete discussions.

There is no specific preknowledge required for this course.

Activities

4 ects. Human Genetics, Ethics and Policy (B-KUL-E09O3a)

4 ECTSEnglishFormat: Lecture26 Second term
POC Bioethics

The course will address a number of current ethical and policy issues in the field of human genetics, including:

1) Introduction to basic principles such as informed consent, the right not to know, privacy and confidentiality, non-directiveness

2) Genetic testing in children and adolescents

3) Return of results and incidental findings

4) Prenatal diagnosis, preimplantation genetic diagnosis and debates around termination of pregnancy

5) Direct-to-consumer genetic testing

6) Gene editing and enhancement

7) Use of biological materials for genomic research, sample sharing and datasharing

8) Donor conception: conceiving a baby with genetic material of a third party

Published articles on Toledo.

Students are expected to prepare all sessions, which will be designed in the form of interactive lectures and class discussions.

Evaluation

Evaluation: Human Genetics, Ethics and Policy (B-KUL-E29O3a)

Type : Exam during the examination period
Description of evaluation : Written
Type of questions : Open questions
Learning material : None